dysTalk Flip - Is There Anyone Who Understands This - Dyspraxia - Forum - dysTalk

Can someone point me in the right direction ? my son who is 9 i have been going to his school for 4 years saying i thought he had adhd ! to be told no and he was not assessed ,my son started a new school 2 months ago so i meet with the school nurse ,i tell her all the like syptoms associated with adhd i also tell her he cannot write very well in his old school he had support with writing ,he does not walk properly toe walker has to wear piedros boots etc,so she said about dyspraxia ,i never heard of it but when i looked it up it was my son ! Dan is clumbsy and has been years. cont below ....the number of times i have had to collect him from school coz he fell and banged his head,Dan will not participate in sports he has joined numerous clubs etc hes not interested ,Dan has 2 bikes cannot and will not ride as he finds it difficult ,Dan is very forgetful and loses things , Also i only realised the other day Dan does not use a knife and fork when i asked him to cut something up it was foreign to him he held the knife in left hand and found it very difficult .i use to tell Dan off for eating with his fingers . ......he has outbursts he day dreams alot ,any way she assesed Dan and said he does not have walking problems but when she assesed him he was wearing his piedros boots which keep him stable ,she never assesed his hand writing which even kids from his class wrote in his bbook that they could not read his writing ,i was convinced he had this i am still convinced ,when Dan came home and he told me the nurse made him hop i asked dan to hop accross the room without his boots that provide support he flew across the room no balance ....cont belowwhen i spoke to her she talked to me like i was a complete idiot ! why would i be saying for years i thought he had adhd . she is getting him referred to a peaodtrician but what can i do more to get a propper assment ??? i feel like im banging my head against a brick wall ,anyone can offer advice please ???? ( also going through his school reports it states Dan has mobility problems and writing probs .she hasnt even spoke to his old school he was at.

23/09/2011 12:36:22
kelly (Member)

Yes, I'm dyspraxic, and as a teenager had all the stereotypical symptoms.

A big turning point was when I joined the Territorial Army and underwent basic military training.

The military is not the place where dyspraxia is tolerated, accepted or even recognised. You just have to learn those drills and your whole life is consumed with completeing drills and remembering things.

To do that you have be completely focused all the time - there is room for letting your 'mind drift' or thinking about elegant solutions.

I found some curious anomalies - I was an expert rifle and machine gun shot, but hopeless at disassembly.

15/09/2011 20:28:24
Andrew Stone

My 23 yr old son also has an IQ well over 1150 and just completed a Masters Degree. He found University to be really inspiring as he met so many people on the same intellectual level. He often struggled with the practicalities of living away from home and travelling, organising meals, making friends etc let alone the actual time keeping and writing down work but the internet is a wonderful tool and he would Skype me, dictate his thoughts and I'd type them and send them back to him. he sent me his timetable and I made sure he got where he should be on time and I helped him keep abreast of deadlines. If your son doesn't have the qualifications to get a place at University, try to get him to join some of the public lectures or even do a course online which has good tutor contact. What about joining research groups?

12/09/2011 22:58:48
nordy

I have a son with Dyspraxia who is almost 29 and still does not work. He also is very bright but somehow he will not try to find work of any kind. I'm at my whits end and don't know how to help him. His fiancee has just broken up with him because of his lack of interest in getting a job. I'm so worried about what will happen to him when we're not here any longer. Is it the dyspraxia that's stopping him from looking for work?

26/06/2011 19:49:53
linda southall

My son is 18 and has dyspraxia,dyslexia and ADHD.

I also have a younger daughter with the same but she has also been diagnosed with autism.

After a tough time at school my son found himself a group of 'odd kids'all with similar problems. He has an odd untypical teenage life but I think he is happy. next year he wants to go to university but does not want a student life but to continue in his own world.

I don't know if your son would find it helpful to talk to my son

26/04/2011 19:50:41
Nicola Bamber

I so identify with this. I have a 26 year old son, he hates diagnoses as we have had so many and so few but the one clear thing was a high verbal IQ and low performance scores which I understand is indicative of dyspraxia. Left handed, handwriting a problem, bangs door and can't seem to pick up easily what 'is going on', almost as though common sense is missing. He is slow to take in what you say, and it is like a delay group before an answer comes out. But he writes fluently - it is like Jekyll and Hyde and thinks deeply. He is doing an access course which has been successful but he is bored now with having to say the right thing to get marks, he would like to research more deeply. He gets unhappy and has low self esteem and it is hard work.

04/04/2011 15:33:48
Barbary (Member)

hi i am 23 and relate with how your son feels in alot of ways, would be willing too talk via messenger or mail, if he wanted. i too am in a uni, but it took a lot to get there, and was a long hard road.

03/01/2011 20:45:33
kenneth

I'm 23 and have dyspraxia. I can relate to what you're saying. I'm at university but still feel sometimes that 'nobody understands me'... I'm unsure how much of this is due to dyspraxia per sae and how much is common to most people though. Is your son at Uni? I'm afraid to say I don't really know who there is to help, except for understanding people who do come up now and again.

15/12/2010 20:34:04
Charlotte

Sorry for the double post but i would really like to get in contact...

12/10/2010 13:57:40
DanCohen

I'm in a similar position to your son, I find it hard to relate to people intelectually, After a dyspraxia assessment, I was told I was in the 99.9% centile.

23/08/2010 16:05:41
DanCohen

I am a teacher and work with students with learning difficulties, whether dyslexic and/or ADHD, in most cases they have very high IQs. They are able to succeed academically but do need to be taught in a different manner. They tend to be 'system thinker' so it is often difficult to understand what they are trying to relate at first since they are talking about the 'whole system' so to speak and the rest of us are still at the beginning. I like to equate it to a model of a castle. They have visualized the whole castle and we are still drawing the draw bridge so we can't always understand each other until we meet in the middle.

Have you checked with your local university to see if there are any research projects he could be included in?

LInda.

www.teachallkids.com

08/02/2010 00:53:50
TAKlinda (Member)

Hi Marie,

my 12-year-old has only been recently diagnosed with dyspraxia and is a talented guitarist and songwriter.

I too feel exhausted at having to defend him against people who are writing him off and that includes members of our family who cannot comprehend that he has a disability.

I can't offer any help but certainly know how you feel.

22/12/2009 14:37:36
Annemarie

I have a 24 year old son. He is dyspraxic and so frustrated. He is an utterly gifted deep thinker & writes prolifically and has an amazing command of english & factual knowledge & code-breaking. His IQ in certain areas is 150+. Despite life-coaching & other support, he has not found anyone who can understand him intellectually & help come to terms with the overwhenlming thought of tedious normal life. I am exhausted from constantly defending him agianst those who have written him off. He is amazing and capable of great things.Who is there to help at this level?

11/12/2009 20:42:04
marie (Member)